iHealth
Taking Control of Personal Healthcare
iHealth Contents
Introduction

Personal Medical Monitoring Devices

Disease-Monitoring Devices

Personal Health Record (PHR)Keeping


Related Sites
Medical Device Workshop: June 3, 2004

Medical Device Links

Personal Health Record (PHR) Keeping

Xiaoli Huang
University of Maryland
College of Information Studies
Course CMSC828, Spring 2004
 

References

Articles discussing Personal Health Records.  Accessed in May 2004 from:
http://www.informatics-review.com/records.html

 

Aisaka, K., Tsutsui, K., Murakami, Y., et al. (1995). User interface design and evaluation for electronic medical record system.  Proceedings MEDINFO’ 95, 781-784.

 

Anderson, J.G. (2000). Security of the distributed electronic patient record: a case-based approach to identifying policy issues. International Journal of Medical Informatics, 60:111-118.

 

Baker, D. B. and Masys, D. R.(1999). PCASSO: a design for secure communication of personal health information via the internet. International Journal of Medical Informatics, 54: 97–104.

 

Benson, M., Junder, A., Quinzio, L., et al. (2000). Clinical and practical requirements of online software for anesthesia documentation – an experience report. International Journal of Medical Informatics, 57:155-164.

 

Berger, R.G., Kichak, J.P., Brooks, D.L., et al. (2001). Issues in the creation of a health system “paperless” electronic medical record. 2001 HIMSS Proceedings, Workshop J:1-7.

 

Blair, J.S., Cohn, S.P. (2001). NCVHS Recommendation for patient medical record information standards. 2001 HIMSS Proceedings, 2(Session 81):1-9.

 

Blobel, B. (2000). Advanced tool kits for EPR security. International Journal of Medical Informatics, 60:169–175.

 

CancerOption.com Web site. Accessed in May 2004 from: http://www.canceroption.com/capmed/index.asp.

 

Cimino, J.J., Li, J., Mendonca, E.A., et al. (2000). An evaluation of patient access to their electronic medical records via the World Wide Web. Proceedings AMIA Symposium 2000: 151-155.

 

Cimino, J.J., Patel, V.L., and Kushniruk, A.W.  (2002). The patient clinical information system (PatCIS): technical solutions for and experience with giving patients access to their electronic medical records.  International Journal of Medical Informatics, 68:113-127.

 

Cohn, W. (2001). PM Health Heritage: development and evaluation of a family health history collection and assessment tool [lecture]. TEPR 2001, Boston, Mass.; May 11, 2001.

 

Connecting for Health - Personal Health Records Working Group, Accessed in April 2004 from http://www.connectingforhealth.org/workinggroups/personalhealthwg.html

 

Dayhoff, R.E., Kuzmak, P.M., and Meldrum, K. (2001). Experience providing a complete online multimedia patient record. 2001 HIMSS Proceedings, 1(Session 38):1-9.

 

De Meyer, F., Lundgren, P.A., de Moor, G., et al. (1998). Determination of user requirements for the secure communication of electronic medical record information. International Journal of Medical Informatics, 49:125-130.

 

Denton, R.C. (2001). Will patrients use electronic personal health records? Responses from a real-life experience.  Journal of Healthcare Information Management, 15:251-259.

 

Dickey, L.L., and Petitti, D. (199?) A patient-held minirecord to promote adult preventive care. Journal of Family Practice, 34:457-63.

 

Doller, H. (2001). Moving from an imputer-oriented to an output-oriented EMR architecture. 2001 HIMSS Proceedings, 1(Session 30):1-9.

 

Electronic Medical Records on the Internet.  Accessed in April 2004 from

http://www-personal.umich.edu/~tfrancis/emr.html

 

Evans, J.M., Bentley, T., Bruno, C., et al. (2001). Top ten strategies in the year 2000 for implementing a computerized patient record (CPR). 2001 HIMSS Proceedings, 3(Session 107):89-104.

 

Greenes, R.A. and Lorenzi, N.A. (1998).  Audacious goals for health and biomedical informatics in the new millennium.  Journal of the American Medical Informatics Association, 5:395-400.

 

Hertz, C.G, Bernheim, J.W., and Perloff, T.N. (1976). Patient participation in the problem-oriented system: a health care plan. Medical Care, 14:77-79.

 

Hetzelm, M.R., Williams, I.P., and Shakespeare, R.M. (1979). Can patients keep their own peak-flow records reliably? Lancet, 1(8116):597-599.

 

Hood, B., Clarke, J., and Crouch, R. (2001). An incremental approach to a web-based computerized medical record. Journal of Healthcare Information Management, 15:199-205.

 

Iakovidis, I. (1997) Interacting with electronic healthcare records in the information society.  Proceedings of the Seventh Internation Conference on Human-Computer Interaction ’97, San Francisco.

 

Iakovidis, I. (1998).  Towards personal health record: current sitations, obstacles and trends in implementation of electronic healthcare record in Europe. International Journal of Medical Informatics, 52:105-115.

 

Iakovidis, I.( 1998). Towards personal health record: current situation, obstacles and trends in implementation of electronic healthcare record in Europe. International Journal of Medical Informatics, 52:105–115.

 

Jones, R. Pearson, J., McGregor, S., et al. (1999). Randomised trial of personalized computer based information for cancer patients. BMJ, 319(7219):1241-1247.

 

Keeler, J., and Newman Jr., J. (2001). Paperless success: the value of e-medical records. 2001 HIMSS Proceedings, 2(Session 45):1-7.

 

Kim, M. I. and Johnson, K. B. (2002). Personal Health Records: Evaluation of Functionality and Utility. Journal of the American Medical Informatics Association, 9(2): 171-180.

 

Marshall, P. Personal Health Records: Their Benefits and the Role of Standards. Accessed in April 2004 from

http://www.ncvhs.hhs.gov/020724p5.pdf

 

Masys, D.R. and Baker, D.B. (1997). Patient-centered access to secure system online (PCASSO): a secure approach to clinical data access via World Wide Web. Proceedings AMIA Annual Fall Symposium 1997: 340-343.

 

McDonald, C. J. (1997). The Barriers to Electronic Medical Record Systems and How to Overcome Them. Journal of the American Medical Informatics Association, 4(3): 213- 221.

 

McDonald, C. J., Overhage JM, Abernathy G, et al.(1995). The Regenstrief Medical Record System: cross-institutional usage, note writing, and MOSAIC/HTML. JAMIA, 19th SCAMC Proceedings:1029.

 

Miller, S.A. (1990). A trial of parent held child health records in the armed forces. BMJ, 300(6731):1046.

 

Marietti, C. et al.(2002). Nine Tech Trends. Healthcare Informatics. Accessed in April 2004 from http://www.healthcare-informatics.com/issues/2002/02_02/cover.htm

 

Ondo, K.J., Wagner, J., and Gale, K.L. (2002). The electronic medical record (EMR), hype or reality? 2002 HIMSS Proceedings, Session 63:1-12.

 

Riva, A., Mandel, K.D., Oh, D.H., et al. (2001). The personal internetworked notary and guardian. International Journal of Medical Informatics, 62:27-40.

 

Sadan, B. (2001). Patient data confidentiality and patient rights. International Journal of Medical Informatics, 62:41-49.

 

Schneider J.H.(2001). Online personal medical records: Are they reliable for acute/critical care? Crit Care Med, 29(8):196–201.

 

Sittig, D. F. (2002). Personal health records on the internet: a snapshot of the pioneers at the end of the 20th Century. International Journal of Medical Informatics, 65: 1–6.

 

Smith, D. and Mancini Newell, L. (2000). A physician’s perspective: deploying the EMR. Journal of Healthcare Information Management. 16:71-79.

 

Sun, K. (2001). Development of a Model and Comparison of Personal Health Record and Related Health Sites. Accessed in April 2004 from

http://www.informatics-review.com/thoughts/ksun.html

 

Tang, P.C. and Newcomb, C. (1998). Informing patients: a guide for providing patient health information. Journal of the American Medical Informatics Association. 5:563-570.

 

Tange, J., Hasman, A., de Vries Robe, P.F., et al. (1997).  Medical narratives in electronic medical records. International Journal of Medical Informatics, 46:7-29.

 

Ueckert, F., Goerz, M., Ataian, M., et al. (2003). Empowerment of patients and communication with health care professional through an electronic health record. International Journal of Medical Informatics, 70:99-108.

 

Waegermann, C.P. (2001). Consumer-driven health care records. TEPR 2001, Boston, Mass.; May 11,2001,

 

Williams, J.G. and Morgan, J.M. (1995). Clinican-information interface.  Proceedings MEDINFO’ 95, 801-805.

 

Personal Health Records on the Internet  

Kaiser Permanente Northwest's Personal Health Link

Healtheon/WebMD

Elixis Corporation's YourHealthChart (Click to take a tour)

Cyberspace Telemedical Office

Personal MD

AMA Personal Health History

Your Health Portrait (questionnaire only)

WellMed -- WellRecord

Medscape's Daily Diary

Personal Health Manager

4Healthlylife ($24.95)

Catholic Healthcare West - click on "my page"

HealthCompass

CapMed's Personal Health Record (demo only)

Lifeconnect.com - online record for members of participating health plans

Accordant's Personal Health Manager

98Point6

AllHealth.com's Personal Health Record - another implementaton of WellMed's WellRecord!

GlobalMedic's eHealth Record

LifeLineMed's Record - costs $45 to join

eMD.com

Medifile - Available to members of participating organizations only.

TheMedicalRecord - cost $35 to join

MyHealthNotes - Personal Health Manager

HealthAtoZ

HealthCPR.com - currently only a demo

QuickViewHX - UserID: pcaware, Password: pcaware.

My Patients Charts.com

I-Beacon.com (demo only)

Your HealthChart.com - (Coming Soon)

Demonstration of CareGroup's Personal Health Web Site   

Cerner's IQ Health (Demo)

IDX's Channel Health (Demo)

UrgentLink's Online Safety Deposit Box (Demo)

PHDtogo - discusses a record, but I can't find it.

The Health Network (No longer available)

MyOnlineMedicalRecord.com   (no longer available)

My HealthePage (no longer available)

Health Tracker (No longer available)

StatChart (no longer available)

 

Personal, Disease-specific health profiles on the Internet

MyAsthma

MyAllergy

MyDiabetes

 

Internet-based Medical Records

Medical Logic

PCASSO

 

Systems promised in the near future

MedicAlert

Dr. Koop

UrgentLink

 

Site last modified: 02/27/2008